Strengthening supportive care–patient guidance oncology models for adolescents and young adults with cancer: A community-based approach by Gunvati Jagan Nath Kapoor Foundation GJK.

Abstract

e23062 Background: Adolescents and Young Adults (AYA) with cancer face unique clinical, psychosocial, and socioeconomic challenges that significantly affect treatment adherence, quality of life, and long-term survivorship outcomes. Despite advances in cancer therapy, supportive care services for AYA patients remain fragmented and under-prioritized, particularly in low- and middle-income settings. The GJK model for Patient Guidance is tailored specifically for AYA cancer patients, in this aspect specifically the testicular patients. GJK’s Guidance framework adopts a holistic, patient-centered approach integrating psychosocial counselling, treatment navigation, financial guidance, stakeholder connect, and caregiver engagement. The model emphasizes early intervention from diagnosis through treatment and survivorship, with a strong focus on mental well-being, and social reintegration. Digital engagement tools, and partnerships with oncology centers enable scalable and sustainable delivery of services. Methods: Our model is integrated within the hospital healthcare system. Patients received psychosocial interventions in form of services such as documentation assistance, financial guidance, emotional support, navigation, linkages, financial aid, accommodation guidance so that they do not abandon treatment. Results: Between 2020 and 2025, 2394 patients with urological malignancies were referred for psychosocial support, of whom 606 (25%) were diagnosed with Germ Cell Tumors (GCT). The majority of GCT patients 537 (89%) were adolescents and young adults aged 15–39 years. Treatment compliance was observed in 484 (80%) of GCT patients. A total of 8097 psychosocial support services were delivered, with patients accessing an average of 3–4 visits during active treatment. ₹3,79,09,000 funds were raised through various stakeholders to effectively help with treatment costs for these patients. Digital engagement and survivors meet led to 474 patients served and provided a platform to empower and create a platform for survivors to create a peer network. Conclusions: Program insights demonstrate improved patient engagement, reduced treatment abandonment, enhanced emotional well-being, and better coordination between clinical and other stakeholders in the health system. The GJK Patient Guidance model highlights the importance of age-appropriate, culturally sensitive supportive care interventions for AYA patients and underscores the role of a non-profit in bridging critical gaps in oncology care. This initiative advocates for the systematic integration of AYA-focused supportive care within oncology programs and offers a replicable framework to strengthen patient services across diverse healthcare settings, enhance adherence and optimize clinical outcomes.