Real-world utilization of a patient-centric symptom management guide for metastatic breast cancer.
Abstract
e23403 Background: Metastatic breast cancer (MBC) and its treatments are associated with significant symptom burden that can negatively impact quality of life (QoL), adherence to therapies, and patient-provider communication. Individuals with MBC can be inundated with complex information during clinical encounters, and oral information retention may be limited. Although evidence-based symptom management strategies exist, many educational resources are not designed in an accessible, patient-centered format, limiting real-world use. Co-created tools may improve usability and adoption, yet evidence of sustained implementation in practice remains limited. Methods: An evidence-based symptom management MBC Guide that was co-developed with patients and healthcare providers endorsed by AONN+ has been implemented in clinical practice. Post-implementation evaluation included analysis of Viver’s ordering and reordering data, along with provider survey responses assessing utilization, satisfaction, and perceived impact. Results: Real-world data demonstrate sustained adoption in clinical practice, with > 384 total orders and > 30 reorders over the past 6 months, indicating continued use in clinical workflows. Providers reported high endorsement, with 91% reporting they were extremely or very likely to recommend the guide to other HCPs on a 10-point Likert scale. Ease of patient understanding was also rated highly, with 92% of providers stating it was easy or very easy for patients to read and understand. Providers identified the greatest impact on their practice as increasing patients’ ability to manage symptoms (44%), enhancing communication and shared decision-making (38%), and improving patient experience and QoL (18%). Additionally, 75% of providers expressed interest in a Spanish-language version. Conclusions: Sustained ordering, reordering behavior, and strong provider endorsement help to validate the patient-centric, co-created design of this MBC symptom management Guide. Post-implementation data demonstrate real-world feasibility, usability, and perceived impact on symptom self-management, provider-patient communication, and patient experience, supporting co-creation as an effective strategy for developing scalable, practice-ready educational tools. Ongoing efforts include translation into Spanish to expand reach and equity.
Article Details
Journal Info
Journal of Clinical Oncology
Lippincott Williams & Wilkins
Authors (7)
Victoria E. Barghout
Viver Health, LLC, Morristown, NJ
Laura Medina
Viver Health, LLC, Morristown, NJ
Rebecca Best
Viver Health, LLC, Morristown, NJ
Jeanine Patten-Coble
Little Pink Houses of Hope, Burlington, NC
Sabrina L. Meyers
Gilead Sciences, Inc., Foster City, CA
Helen Hammond
Gilead Sciences, Foster City, CA
Cosmina Hogea
Gilead Sciences, Inc., Foster City, CA