Long-term stability of posttranscriptional genetic silencing of BCL11A using a shmiR vector in Sickle Cell Disease

E Erica B Esrick (Boston Children's Hospital, Boston, Massachusetts, United States) L Leslie Lehmann (Division of Pediatric Hematology/Oncology, Dana-Farber Cancer Institute, Boston, MA, United States) A Amy Federico (Boston Children's Hospital, Boston, MA, Boston, Massachusetts, United States) H Helene Vincon (Boston Children's Hospital, Boston, Massachusetts, United States) B Boya Liu H Heather Daley C Colleen Dansereau (Dana-Farber Cancer Institute, Boston, Massachusetts, United States) S Satiro De Oliveira (Department of Pediatrics, David Geffen School of Medicine, University of California, Los Angeles) J John K. Everett (Department of Microbiology, Perelman School of Medicine, University of Pennsylvania, Philadelphia) P Pei-Chi Kao (Boston Children's Hospital/Dana-Farber Cancer Institute, Boston, Massachusetts, United States) T Theodore B Moore (UCLA, Los Angeles, CA, California, United States) E Emily Morris (Dana-Farber Cancer Institute, Boston, Massachusetts, United States) H Helene Trebeden-Negre (CellforCure, Les Ulis, France) K Kit L. Shaw G Gavin D Roach (Seattle Children's Hospital, Seattle, Washington, United States) J Jerome Ritz (Dana–Farber Cancer Institute, Boston) A Aoife M Roche (University of Pennsylvania, Philadelphia, Pennsylvania, United States) O Olivia Silva (Boston Children's Hospital, Boston, Massachusetts, United States) P Patricia Ellen Grant (Fetal Neonatal Neuroimaging and Developmental Science Center, Division of Newborn Medicine, Boston Children’s Hospital, Harvard Medical School) F Frederic D Bushman (University of Pennsylvania, Philadelphia, Pennsylvania, United States) D Donald B. Kohn (Department of Pediatrics, David Geffen School of Medicine, University of California, Los Angeles, Los Angeles) A Akshat Jain (Loma Linda University, Redlands, California, United States) W Wendy B. London (Boston Children's Hospital, Boston, Massachusetts, United States) D David G Justus (Boston Children's Hospital, Canton, Massachusetts, United States) M Myriam Armant J John P Manis (Boston Children's Hospital, Boston, Massachusetts, United States) D David A Williams (Boston Children's Hospital, Boston, Massachusetts, United States)

Abstract

Sickle cell disease (SCD) is characterized by chronic hemolysis, painful vaso-occlusive episodes (VOE) and end organ damage. High levels of fetal hemoglobin (HbF) attenuate the disease phenotype. We used a lentivirus vector (LVV) expressing an shRNA embedded in a microRNA (shmiR) targeting BCL11A in erythrocytes to induce HbF in a first-in-human pilot study in SCD. The purpose of the study was to assess hematopoietic stem/progenitor cells (HSPCs) collection, transduction parameters, safety, HbF induction and durability. Eleven eligible patients with SCD had HSC collection. Plerixafor-mobilized peripheral blood HSCs required for manufacturing were obtained in one mobilization cycle for 10/11 subjects and 11/11 patient products were successfully manufactured with a median time to release of product of 39 days. Ten patients were infused with autologous HSCs transduced with the shmiR vector. Engraftment occurred in all 10 patients. With a median follow-up of 58 months (range: 35-82) after infusion, no adverse events attributed to the gene vector have occurred. Transduction efficiency was 93.1%. One patient demonstrated low engraftment of transduced cells and had suboptimal HbF induction. In the remaining 9 patients, at 2 years post-treatment peripheral blood demonstrated 71% F cells with 11.9 pg HbF/F cells, both stable in 9 patients with ≥48 months follow-up. All patients who had VOEs prior to gene therapy demonstrated sustained mitigation of pain events. These data demonstrate excellent manufacturing efficiency and safety, with efficacy of targeting BCL11A using a shmiR LVV, and long-term durability of the shmiR vector, leading to a pivotal multi-site phase 2 trial currently underway (NCT05353647).

Article Details

Journal Blood
Volume / Issue Vol. 1, Issue 1
Published June 02, 2026
ISSN 0006-4971
Publisher Elsevier BV

Journal Info

Blood

Elsevier BV

ISSN: 0006-4971 Health Sciences

Authors (27)

E

Erica B Esrick

Boston Children's Hospital, Boston, Massachusetts, United States

L

Leslie Lehmann

Division of Pediatric Hematology/Oncology, Dana-Farber Cancer Institute, Boston, MA, United States

A

Amy Federico

Boston Children's Hospital, Boston, MA, Boston, Massachusetts, United States

H

Helene Vincon

Boston Children's Hospital, Boston, Massachusetts, United States

B

Boya Liu

H

Heather Daley

C

Colleen Dansereau

Dana-Farber Cancer Institute, Boston, Massachusetts, United States

S

Satiro De Oliveira

Department of Pediatrics, David Geffen School of Medicine, University of California, Los Angeles

J

John K. Everett

Department of Microbiology, Perelman School of Medicine, University of Pennsylvania, Philadelphia

P

Pei-Chi Kao

Boston Children's Hospital/Dana-Farber Cancer Institute, Boston, Massachusetts, United States

T

Theodore B Moore

UCLA, Los Angeles, CA, California, United States

E

Emily Morris

Dana-Farber Cancer Institute, Boston, Massachusetts, United States

H

Helene Trebeden-Negre

CellforCure, Les Ulis, France

K

Kit L. Shaw

G

Gavin D Roach

Seattle Children's Hospital, Seattle, Washington, United States

J

Jerome Ritz

Dana–Farber Cancer Institute, Boston

A

Aoife M Roche

University of Pennsylvania, Philadelphia, Pennsylvania, United States

O

Olivia Silva

Boston Children's Hospital, Boston, Massachusetts, United States

P

Patricia Ellen Grant

Fetal Neonatal Neuroimaging and Developmental Science Center, Division of Newborn Medicine, Boston Children’s Hospital, Harvard Medical School

F

Frederic D Bushman

University of Pennsylvania, Philadelphia, Pennsylvania, United States

D

Donald B. Kohn

Department of Pediatrics, David Geffen School of Medicine, University of California, Los Angeles, Los Angeles

A

Akshat Jain

Loma Linda University, Redlands, California, United States

W

Wendy B. London

Boston Children's Hospital, Boston, Massachusetts, United States

D

David G Justus

Boston Children's Hospital, Canton, Massachusetts, United States

M

Myriam Armant

J

John P Manis

Boston Children's Hospital, Boston, Massachusetts, United States

D

David A Williams

Boston Children's Hospital, Boston, Massachusetts, United States