Information needs of breast cancer patients in a Brazilian capital city.

Abstract

e13636 Background: Breast cancer is one of the most common cancers among women worldwide and in Brazil, influenced by genetic and lifestyle factors. Adequate clinical information during diagnosis and treatment is essential for patient-centered care, as informational access and understanding directly affect decision-making, coping, and treatment adherence. Objectives: To characterize informational satisfaction among people with breast cancer receiving outpatient treatment and to identify the resources used to obtain health-related information. Methods: This descriptive–exploratory study used a mixed-methods approach. Adults with confirmed breast cancer, recently diagnosed or undergoing treatment, were included. Data were collected through interviews using a sociodemographic questionnaire, the EORTC QLQ-INFO25, and a semi-structured interview to explore informational experiences and satisfaction. Results: Forty-two women with breast cancer were analyzed, most receiving care in the private sector and with high educational levels. The mean EORTC QLQ-INFO25 score was 62.3, reflecting overall good informational satisfaction. Most participants reported understanding the treatment plan, potential adverse effects, and recommended actions for acute events, and felt comfortable discussing concerns with the healthcare team, particularly physicians. Nevertheless, approximately half reported unmet informational needs. Identified gaps included management of specific side effects (hair loss, mucositis), sexual and gynecological health, nutrition, and information regarding patient rights and supportive services. Digital sources were frequently used in addition to healthcare professionals. Conclusions: Although overall informational satisfaction was high, clinically relevant gaps remain in key supportive care domains. The frequent use of digital resources underscores the need for standardized, accessible, and evidence-based educational materials to strengthen outpatient breast cancer care.