<i>BRAF</i> V600E-positive mononuclear cells in blood at diagnosis portend treatment failure and neurodegeneration in pediatric LCH

H Howard Lin (1Department of Genetics and Genomics, Baylor College of Medicine, Houston, TX) A Akanksha Batajoo (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) E Erin Peckham-Gregory (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) D Daniel Zinn (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) O Olive S. Eckstein (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) N Nader Kim El-Mallawany (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) N Nitya Gulati Z Zachary D. Prudowsky (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) B Brooks Scull (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) J Jessica Velazquez (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) H Harshal Abhyankar (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) S Stephen J. Simko (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) D Daria Vakula (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) R Ryan Fleischmann (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) V Vivekanudeep Karri (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) M M. John Hicks (8Department of Pathology and Immunology, Baylor College of Medicine, Houston, TX) K Kevin E. Fisher (8Department of Pathology and Immunology, Baylor College of Medicine, Houston, TX) C Choladda V. Curry (8Department of Pathology and Immunology, Baylor College of Medicine, Houston, TX) A Angshumoy Roy (1Baylor College of Medicine, Pathology & Immunology, Houston, United States) D Deborah Schiff (6Rady Children's Hospital and the University of California San Diego, San Diego, United States) K Kenneth M. Heym (11Department of Pediatric Hematology and Oncology, Cook Children’s Medical Center, Fort Worth, TX) M Michael E. Scheurer D D. Williams Parsons (1Department of Genetics and Genomics, Baylor College of Medicine, Houston, TX) M Miriam Merad T Tsz-Kwong Man (2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX) K Kenneth L. McClain (12Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine and Texas Children’s Hospital, Houston, TX) J Jennifer Picarsic (3Department of Pathology, University of Pittsburgh School of Medicine, Pittsburgh, PA) C Carl E. Allen (6Texas Children’s Cancer and Hematology Center, Texas Children’s Hospital, Houston, TX)

Abstract

Abstract Langerhans cell histiocytosis (LCH) is a myeloid neoplastic disorder driven by mitogen-activated protein kinase (MAPK) activation in hematopoietic cells. Historically, LCH has been staged according to involvement of “risk organs” (bone marrow, liver, and spleen), based on risk of death. With improvements in supportive care and efficacy of MAPK pathway inhibitors, patients with LCH now rarely die. However, most patients with LCH with multisystem disease are not cured with current front-line chemotherapy, and treatment failure is associated with long-term morbidity, including LCH-associated neurodegeneration (LCH-ND). In this study, we evaluated the impact of extent of LCH at presentation, tumor genotype, and BRAFV600E in pretherapy peripheral blood mononuclear cells (PBMCs) and bone marrow on systemic and central nervous system outcomes in a cohort of 385 pediatric patients with LCH and 115 adults with LCH, followed up for a median of 4 years (range, 0.02-18 years). Five-year event-free survival was 50.7% for pediatric patients and 32.7% for adult patients with LCH. In the pediatric cohort, presence of BRAFV600E PBMC was strongly associated with front-line treatment failure (hazard ratio [HR], 7.7). Remarkably, BRAFV600E PBMC at diagnosis also identified patients at the highest risk of developing LCH-ND (HR, 23.1). These findings support an updated model of pediatric LCH pathogenesis in which persistence of disease reservoir and cell of origin determine extent of disease and clinical risks. We, therefore, propose a major revision of pediatric LCH diagnostic staging, shifting from focus on historical risk of death to risks of systemic treatment failure and LCH-ND based on lesion location, lesion genotype, and peripheral LCH reservoir (eg, BRAFV600E PBMC).

Article Details

Journal Blood
Volume / Issue Vol. 146, Issue 2
Published July 10, 2025
Pages 206-218
ISSN 0006-4971
Publisher Elsevier BV

Journal Info

Blood

Elsevier BV

ISSN: 0006-4971 Health Sciences

Authors (28)

H

Howard Lin

1Department of Genetics and Genomics, Baylor College of Medicine, Houston, TX

A

Akanksha Batajoo

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

E

Erin Peckham-Gregory

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

D

Daniel Zinn

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

O

Olive S. Eckstein

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

N

Nader Kim El-Mallawany

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

N

Nitya Gulati

Z

Zachary D. Prudowsky

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

B

Brooks Scull

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

J

Jessica Velazquez

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

H

Harshal Abhyankar

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

S

Stephen J. Simko

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

D

Daria Vakula

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

R

Ryan Fleischmann

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

V

Vivekanudeep Karri

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

M

M. John Hicks

8Department of Pathology and Immunology, Baylor College of Medicine, Houston, TX

K

Kevin E. Fisher

8Department of Pathology and Immunology, Baylor College of Medicine, Houston, TX

C

Choladda V. Curry

8Department of Pathology and Immunology, Baylor College of Medicine, Houston, TX

A

Angshumoy Roy

1Baylor College of Medicine, Pathology & Immunology, Houston, United States

D

Deborah Schiff

6Rady Children's Hospital and the University of California San Diego, San Diego, United States

K

Kenneth M. Heym

11Department of Pediatric Hematology and Oncology, Cook Children’s Medical Center, Fort Worth, TX

M

Michael E. Scheurer

D

D. Williams Parsons

1Department of Genetics and Genomics, Baylor College of Medicine, Houston, TX

M

Miriam Merad

T

Tsz-Kwong Man

2Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine, Houston, TX

K

Kenneth L. McClain

12Section of Pediatric Hematology-Oncology, Department of Pediatrics, Baylor College of Medicine and Texas Children’s Hospital, Houston, TX

J

Jennifer Picarsic

3Department of Pathology, University of Pittsburgh School of Medicine, Pittsburgh, PA

C

Carl E. Allen

6Texas Children’s Cancer and Hematology Center, Texas Children’s Hospital, Houston, TX