HLA-haploidentical stem cell transplantation for chronic granulomatous disease: an EBMT-IEWP retrospective study

Q Quentin Riller (8Université Paris Cité, Paris, France) M Mathias Hauri (2Department of Stem Cell Transplantation, University Children's Hospital, Zürich, Switzerland) S Su Han Lum (3Translational and Clinical Research Institute, Newcastle University, Great North Children’s Hospital, Newcastle upon Tyne, United Kingdom) J Jeroen Knippenberg (3EBMT Office, Leiden, Netherlands) T Tiarlan Sirait (4European Bone Marrow Transplantation, Leiden Study Unit, Leiden, The Netherlands) A Alexandra Laberko (22Department of Immunology, Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology, Moscow, Russia) K Khalid Halahleh (10Department of Internal Medicine, Adult BMT Program, King Hussein Cancer Center, Amman, Jordan) H Hasan Hashem (1King Hussein Cancer Center, Amman, Jordan) M Musa Karakükcü (24Erciyes University, Faculty of Medicine, Kayseri, Turkey, Kayseri, Türkiye) H Henrik Sengeloev (11Department of Hematology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark) F Fulvio Porta (6Pediatric Oncohaematology and BMT Unit Children' s Hospital Spedali Civili, Brescia, Italy) B Benedicte Bruno (33Unite d'Hematologie Pediatrique, Lille, France, Lille, France) M Marco Zecca S Serap Aksoylar (9Ege University Pediatric BMT Centre, Izmir, Türkiye) V Vincent Barlogis (18Department of Pediatric Hematology, La Timone Hospital, AP-HM, Marseille, France, Marseille, France) C Catharina Schuetz (15Department of Pediatrics, Medizinische Fakultät Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany) J Jochen Buechner (1Department of Pediatric Hematology and Oncology, Oslo University Hospital, Oslo, Norway) M Maura Faraci (13Institute G. Gaslini, Genova, Italy) C Claudia Wehr (1University of Freiburg, Hematology, Oncology and Stem Cell Transplantation, Department of Medicine I, Faculty of Medicine, Freiburg, Germany) W Wolfgang Holter (20Department of Pediatric Haematology and Oncology, St. Anna Children's Hospital, Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria) K Karin Mellgren (21Pediatric Clinical Unit, Queen Silvia Children's Hospital, Gothenburg, Sweden) F Franco Locatelli (IRCCS Ospedale Pediatrico Bambino Gesù Rome, Rome) A Antonio Perez Martinez F Felipe Suarez (20Department of Hematology, Hôpital Necker, Paris, France) D Despina Moshous (8Université Paris Cité, Pediatric Hematology-Immunology and Rheumatology Department, Necker-Enfants Malades Hospital, Paris, France, Paris, France) A Andrew R. Gennery (Newcastle University) D Dmitry Balashov (5Department of Pediatric Hematology, Oncology, and Immunology, Dmitry Rogachev National Medical Research Center, Moscow, Russia) M Michael H. Albert (10Department of Pediatric Hematology and Oncology, Dr. von Hauner Children’s University Hospital, Ludwig Maximilian University, Munich, Germany) M Mary Slatter (3Translational and Clinical Research Institute, Newcastle University, Great North Children’s Hospital, Newcastle upon Tyne, United Kingdom) T Tayfun Güngör (12Department of Hematology/Oncology/Immunology, Gene Therapy, and Stem Cell Transplantation, Eleonore Foundation and Children’s Research Center, University Children’s Hospital, Zürich, Switzerland) B Bénédicte Neven

Abstract

Abstract Chronic granulomatous disease (CGD) is an inborn error of immunity characterized by defective NAD phosphate oxidase function, leading to impaired microbial killing, recurrent infections, and granulomatous inflammation. Allogeneic hematopoietic stem cell transplantation (HSCT) is a curative treatment for CGD, particularly effective when a fully HLA-matched donor is available. However, the place of HLA-haploidentical HSCT remains less established. This retrospective multicenter study analyzed outcomes of 64 patients with CGD (53 males; 46 with X-linked CGD) who underwent a first HSCT with HLA-haploidentical family donors, with either in vitro T-cell receptor (TCR)αβ/CD19 depletion or in vivo depletion using posttransplant cyclophosphamide (PTCY). The mean age at transplant was 5.8 years (range, 0-33). Patients exhibited a high disease burden before HSCT, with 45% experiencing infections in the 6 months before HSCT and 67% exhibiting inflammation. Outcomes in the entire cohort showed a 3-year overall survival, event-free survival (EFS), and grade 3 to 4 graft-versus-host disease (GVHD)–free EFS of 75.9%, 70.2%, and 56.1%, respectively, and were not affected by the type of depletion or age. The cumulative incidence (CI) of primary graft failure (PGF) was 20.6%. The CI of grade 2 to 4 acute GVHD was higher in the PTCY group (P = .04), whereas the CI of grade 3 to 4 GVHD was not. These results indicate that HLA-haploidentical HSCT is a feasible transplant option for patients with CGD lacking HLA-matched donors. Further refinement of transplant protocols is necessary to mitigate graft failure and acute GVHD, ultimately improving access and outcomes for this life-saving therapy.

Article Details

Journal Blood
Volume / Issue Vol. 145, Issue 21
Published May 22, 2025
Pages 2518-2527
ISSN 0006-4971
Publisher Elsevier BV

Journal Info

Blood

Elsevier BV

ISSN: 0006-4971 Health Sciences

Authors (31)

Q

Quentin Riller

8Université Paris Cité, Paris, France

M

Mathias Hauri

2Department of Stem Cell Transplantation, University Children's Hospital, Zürich, Switzerland

S

Su Han Lum

3Translational and Clinical Research Institute, Newcastle University, Great North Children’s Hospital, Newcastle upon Tyne, United Kingdom

J

Jeroen Knippenberg

3EBMT Office, Leiden, Netherlands

T

Tiarlan Sirait

4European Bone Marrow Transplantation, Leiden Study Unit, Leiden, The Netherlands

A

Alexandra Laberko

22Department of Immunology, Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology, Moscow, Russia

K

Khalid Halahleh

10Department of Internal Medicine, Adult BMT Program, King Hussein Cancer Center, Amman, Jordan

H

Hasan Hashem

1King Hussein Cancer Center, Amman, Jordan

M

Musa Karakükcü

24Erciyes University, Faculty of Medicine, Kayseri, Turkey, Kayseri, Türkiye

H

Henrik Sengeloev

11Department of Hematology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark

F

Fulvio Porta

6Pediatric Oncohaematology and BMT Unit Children' s Hospital Spedali Civili, Brescia, Italy

B

Benedicte Bruno

33Unite d'Hematologie Pediatrique, Lille, France, Lille, France

M

Marco Zecca

S

Serap Aksoylar

9Ege University Pediatric BMT Centre, Izmir, Türkiye

V

Vincent Barlogis

18Department of Pediatric Hematology, La Timone Hospital, AP-HM, Marseille, France, Marseille, France

C

Catharina Schuetz

15Department of Pediatrics, Medizinische Fakultät Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany

J

Jochen Buechner

1Department of Pediatric Hematology and Oncology, Oslo University Hospital, Oslo, Norway

M

Maura Faraci

13Institute G. Gaslini, Genova, Italy

C

Claudia Wehr

1University of Freiburg, Hematology, Oncology and Stem Cell Transplantation, Department of Medicine I, Faculty of Medicine, Freiburg, Germany

W

Wolfgang Holter

20Department of Pediatric Haematology and Oncology, St. Anna Children's Hospital, Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria

K

Karin Mellgren

21Pediatric Clinical Unit, Queen Silvia Children's Hospital, Gothenburg, Sweden

F

Franco Locatelli

IRCCS Ospedale Pediatrico Bambino Gesù Rome, Rome

A

Antonio Perez Martinez

F

Felipe Suarez

20Department of Hematology, Hôpital Necker, Paris, France

D

Despina Moshous

8Université Paris Cité, Pediatric Hematology-Immunology and Rheumatology Department, Necker-Enfants Malades Hospital, Paris, France, Paris, France

A

Andrew R. Gennery

Newcastle University

D

Dmitry Balashov

5Department of Pediatric Hematology, Oncology, and Immunology, Dmitry Rogachev National Medical Research Center, Moscow, Russia

M

Michael H. Albert

10Department of Pediatric Hematology and Oncology, Dr. von Hauner Children’s University Hospital, Ludwig Maximilian University, Munich, Germany

M

Mary Slatter

3Translational and Clinical Research Institute, Newcastle University, Great North Children’s Hospital, Newcastle upon Tyne, United Kingdom

T

Tayfun Güngör

12Department of Hematology/Oncology/Immunology, Gene Therapy, and Stem Cell Transplantation, Eleonore Foundation and Children’s Research Center, University Children’s Hospital, Zürich, Switzerland

B

Bénédicte Neven