Efficacy and safety results from the primary analysis of the pivotal summit trial: Bezuclastinib in adults with non-advanced systemic mastocytosis

L Lindsay Rein (10Duke University School of Medicine, Durham, United States) N Nathan Boggs (2Uniformed Services University & Walter Reed National Military Medical Center, Department of Medicine, Bethesda, United States) P Prithviraj Bose (5University of Texas MD Anderson Cancer Center, Houston, United States) B Brian Modena (4Modena, La Jolla, United States) V Vito Sabato (5Department of Immunology, Allergology and Rheumatology, University of Antwerp, and Antwerp University Hospital, Antwerp, Belgium) K Karin Hartmann (6Division of Allergy, Department of Dermatology, University Hospital Basel and University of Basel, Basel, Switzerland) C Cem Akin (7University of Michigan, Ann Arbor, United States) T Tracy George (2ARUP Laboratories, Department of Pathology, University of Utah School of Medicine, Salt Lake City, United States) C Cecilia Arana Yi (2Mayo Clinic, Phoenix, United States) H Hanneke Oude Elberink (2Department of Allergology, Groningen Research Institute Asthma and COPD, University Medical Center, University of Groningen, Groningen, Netherlands) D Deepti Radia (4Guy's & St Thomas' NHS Foundation Trust, London, United Kingdom) A Andreas Reiter M Miguel Piris-Villaespesa (20Hospital Universitario Ramón y Cajal, Hematology Department, Madrid, Spain) I Ingunn Dybedal (20Department of Hematology and Pharmacology, Oslo University Hospital, Oslo, Norway) J Jens Panse (9Department of Hematology, Oncology, Hemostaseology and Stem Cell Transplantation, Medical Faculty, RWTH Aachen University & Center for Integrated Oncology Aachen Bonn Cologne Düsseldorf (CIO ABCD), Aachen, Germany) S Stephen Oh (1Washington University School of Medicine, St. Louis, St. Louis, United States) P Pankit Vachhani (25University of Alabama at Birmingham Cancer Center, Birmingham, United States) A Anthony Hunter (3Emory University, Winship Cancer Institute, Atlanta, United States) M Mariana Castells (1Department of Medicine, Division of Allergy and Clinical Immunology, Brigham and Women's Hospital, Harvard Medical School, Boston, United States) C Cristina Bulai Livideanu (6Département de dermatologie, CEREMAST CHU de Toulouse, Toulouse University Hospital, Toulouse, France) P Paul van Daele (18Department of Internal Medicine, and Department of Immunology, Erasmus Medical Center, Rotterdam, Netherlands) A Arnold Kirshenbaum (22Allervie, Glenn Dale, United States) I Iván Álvarez-Twose (3Red Española de Mastocitosis, Toledo, Spain) J Jennifer Vaughn (1The Ohio State University, Hematology, Columbus, United States) M Minakshi Taparia (25University of Alberta, Edmonton, Canada) S Sonia Cerquozzi (19Department of Medicine, Cumming School of Medicine, University of Calgary, Arthur Child Comprehensive Cancer Centre, Calgary, Canada) A Andrzej Mital (10Medical University of Gdansk, Department of Hematology and Transplantology, Gdansk, Poland) M Marek Hus A Alessandra Romano J John Fahrenholz (30Vanderbilt University Medical Center, Nashville, United States) F Frederick Lansigan (19Dartmouth-Hitchcock Medical Center, Lebanon, United States) C Cristina Papayannidis (2IRCCS Azienda Ospedaliero-Universitaria di Bologna, Istituto di Ematologia “Seràgnoli”, Bologna, Italy) H Helena Pomares (1Institut Català d'Oncologia - Hospital Duran i Reynals, Hematology, Hospitalet de Llobregat, Spain) M Michela Rondoni (6Hematology Unit, Ravenna Hospital, University of Bologna, Ravenna, Italy) C Celalettin Ustun (9Rush University, Chicago, United States) R Richard Herrscher (36AirCare, Planto, United States) M Michael Manning (37One of a Kind Medical Research, Paradise Valley, United States) S Stéphane Barete (22Unit of Dermatology Reference Centre for Mastocytosis (CEREMAST) AP-HP, Pitié-Salpêtrière Hospital, Paris, France) M Mar Guilarte (39Hospital Universitario Vall d'Hebron, Barcelona, Spain) C Candido Rivera (1Mayo Clinic, Department of Internal Medicine, Rochester, United States) J Jonathan Bernstein (41University of Cincinnati, Cincinnati, United States) P Peter Vadas (29Department of Medicine, Division of Clinical Immunology and Allergy, St Michael's Hospital, University of Toronto, Toronto, Canada) C Chiara Elena (4University of Pavia, Hematology, Pavia, Italy) D Derek McCulloch (44Royal Prince Alfred Hospital, Camperdown, Australia) N Nina Orfali (45St. James's Hospital, Dublin, Ireland) C Clodagh Keohane (46Cork University Hospital, Cork, Ireland) F Francesco Mannelli (1SOD Ematologia, Università di Firenze, AOU Careggi, Firenze, Italy) P Philippe Schafhausen (3University Medical Center Hamburg-Eppendorf, Department of Oncology and Hematology, Hamburg, Germany) A Amanda Pilla (49Cogent Biosciences Inc., Waltham, United States) J Jenna Zhang (49Cogent Biosciences Inc., Waltham, United States) L Lei Sun N Nisha Shah (49Cogent Biosciences Inc., Waltham, United States) H Hina Jolin (49Cogent Biosciences Inc., Waltham, United States) R Rachael Easton (1Cogent Biosciences Inc., Waltham, United States) J Jessica Sachs (49Cogent Biosciences Inc., Waltham, United States) F Frank Siebenhaar (9Institute of Allergology, Charité – Universitätsmedizin Berlin, Corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany) D Daniel Deangelo (2Dana Farber Cancer Institute, Boston, United States)

Abstract

Abstract Background: Systemic mastocytosis (SM) comprises a spectrum of subtypes characterized by neoplastic mast cell (MC) infiltration of tissues and release of MC mediators. Non-advanced SM (NonAdvSM), including indolent SM (ISM), smoldering SM (SSM), and bone marrow mastocytosis (BMM) subtypes, is the most prevalent form of SM. NonAdvSM can be associated with debilitating symptomology which can significantly impair quality of life. The gain-of-function somatic KIT c.2447 C>T (p.D816V) mutation is found in up to 95% of patients with SM. Bezuclastinib (CGT9486) is an oral, potent, and selective type 1 tyrosine kinase inhibitor with activity against KIT D816V. Results from Summit (NCT05186753) Part 1 informed the recommended phase 2 dose (100 mg QD bezuclastinib) for Part 2. We report topline results from the 24-week assessment of Summit Part 2. Methods: Summit is a multi-center, randomized, double-blind, placebo (PBO)-controlled Phase 2 trial of bezuclastinib in patients with NonAdvSM who had inadequate symptom control despite best supportive care (BSC) medications. The primary endpoint was 24-week mean change from baseline in Mastocytosis Symptom Severity Daily Diary (MS2D2) total symptom score (TSS) (range 0–110), which is a fit-for-purpose patient-reported outcome measure of NonAdvSM symptom severity. Key secondary endpoints included the proportion of patients with ≥50% reduction in serum tryptase, KIT p.D816V variant allele frequency (VAF), bone marrow (BM) MC burden, and MS2D2 TSS, ≥30% TSS reduction. Patients were randomized 2:1 to receive 100mg QD bezuclastinib + BSC or PBO + BSC. Results: As of May 22, 2025, 179 patients were enrolled in Part 2: 119 were randomized to receive bezuclastinib and 60 to placebo. Patients enrolled were representative of the NonAdvSM population with moderate to severe symptoms. Median age (range) was 51 (23-78) years; 65.9% female; mean (SD) baseline MS2D2 TSS 55.6 (19.8); 82% of patients had ISM, 11% had BMM, and 7% had smoldering SSM. At baseline, median (range) KIT p.D816V VAF in whole blood, BM MC burden, and serum tryptase was 0.25% (0-34%), 10% (1-75%), and 40 (6-692) ng/mL, respectively. Bezuclastinib demonstrated statistically significant superiority to placebo on all primary and key secondary endpoints. At Week 24, bezuclastinib led to significantly greater symptom improvement vs placebo (LS mean [95% CI] MS2D2 TSS change: –24.3 [–27.6 to –21.1] vs –15.4 [–19.6 to –11.2]; placebo-adjusted difference: –8.9 points; P=0.0002). A ≥50% reduction in serum tryptase was achieved in 87.4% of bezuclastinib-treated patients vs 0% on placebo (P<0.0001). Significantly more patients receiving bezuclastinib achieved ≥50% reductions in KIT D816V VAF, serum tryptase, BM MCs (P<0.0001), MS2D2 TSS (P=0.01), and ≥30% reduction in MS2D2 TSS (P=0.0004). Most treatment-emergent adverse events (TEAEs) were low grade (gr; 70% Gr 1) and reversible. The most common TEAEs (≥10%) in any treatment group and occurring in greater frequency in the bezuclastinib arm were hair color changes (69.5% vs 5.0%), altered taste (23.7% vs 0%), nausea (22.0% vs 13.3%), increased ALT/AST (22.0% vs 6.6%), headache (17.8% vs 11.7%), alopecia (11.9% vs 3.3%), and increased ALP (10.2% vs 3.3%). TEAEs (≥10%) that occurred more often in the placebo group were diarrhea (13% vs 18%), dizziness (10% vs 12%), fatigue (7% vs 12%), and arthralgia (6% vs 15%). ALT/AST elevations ≥Gr 3 were experienced by 5.9% of patients. The only hepatic adverse events (AEs) reported were transient lab abnormalities; none required hospitalization. Treatment-related AEs requiring dose reductions occurred in 11% of patients receiving bezuclastinib. All discontinuations (5.9%) due to treatment-related AEs were due to transaminase elevations; all fully resolved. Conclusions: At 24-weeks, bezuclastinib 100 mg QD demonstrated statistically and clinically significant improvements in symptom burden and biomarkers of disease vs placebo in patients with NonAdvSM. The treatment was generally well-tolerated and effective across a population that is representative of the real-world NonAdvSM population, including SSM. These results support the use of bezuclastinib to reduce SM burden and symptoms in pts with NonAdvSM, and a potentially disease-modifying impact.

Article Details

Journal Blood
Volume / Issue Vol. 146, Issue Supplement 1
Published November 03, 2025
Pages 80-80
ISSN 0006-4971
Publisher Elsevier BV

Journal Info

Blood

Elsevier BV

ISSN: 0006-4971 Health Sciences

Authors (57)

L

Lindsay Rein

10Duke University School of Medicine, Durham, United States

N

Nathan Boggs

2Uniformed Services University & Walter Reed National Military Medical Center, Department of Medicine, Bethesda, United States

P

Prithviraj Bose

5University of Texas MD Anderson Cancer Center, Houston, United States

B

Brian Modena

4Modena, La Jolla, United States

V

Vito Sabato

5Department of Immunology, Allergology and Rheumatology, University of Antwerp, and Antwerp University Hospital, Antwerp, Belgium

K

Karin Hartmann

6Division of Allergy, Department of Dermatology, University Hospital Basel and University of Basel, Basel, Switzerland

C

Cem Akin

7University of Michigan, Ann Arbor, United States

T

Tracy George

2ARUP Laboratories, Department of Pathology, University of Utah School of Medicine, Salt Lake City, United States

C

Cecilia Arana Yi

2Mayo Clinic, Phoenix, United States

H

Hanneke Oude Elberink

2Department of Allergology, Groningen Research Institute Asthma and COPD, University Medical Center, University of Groningen, Groningen, Netherlands

D

Deepti Radia

4Guy's & St Thomas' NHS Foundation Trust, London, United Kingdom

A

Andreas Reiter

M

Miguel Piris-Villaespesa

20Hospital Universitario Ramón y Cajal, Hematology Department, Madrid, Spain

I

Ingunn Dybedal

20Department of Hematology and Pharmacology, Oslo University Hospital, Oslo, Norway

J

Jens Panse

9Department of Hematology, Oncology, Hemostaseology and Stem Cell Transplantation, Medical Faculty, RWTH Aachen University & Center for Integrated Oncology Aachen Bonn Cologne Düsseldorf (CIO ABCD), Aachen, Germany

S

Stephen Oh

1Washington University School of Medicine, St. Louis, St. Louis, United States

P

Pankit Vachhani

25University of Alabama at Birmingham Cancer Center, Birmingham, United States

A

Anthony Hunter

3Emory University, Winship Cancer Institute, Atlanta, United States

M

Mariana Castells

1Department of Medicine, Division of Allergy and Clinical Immunology, Brigham and Women's Hospital, Harvard Medical School, Boston, United States

C

Cristina Bulai Livideanu

6Département de dermatologie, CEREMAST CHU de Toulouse, Toulouse University Hospital, Toulouse, France

P

Paul van Daele

18Department of Internal Medicine, and Department of Immunology, Erasmus Medical Center, Rotterdam, Netherlands

A

Arnold Kirshenbaum

22Allervie, Glenn Dale, United States

I

Iván Álvarez-Twose

3Red Española de Mastocitosis, Toledo, Spain

J

Jennifer Vaughn

1The Ohio State University, Hematology, Columbus, United States

M

Minakshi Taparia

25University of Alberta, Edmonton, Canada

S

Sonia Cerquozzi

19Department of Medicine, Cumming School of Medicine, University of Calgary, Arthur Child Comprehensive Cancer Centre, Calgary, Canada

A

Andrzej Mital

10Medical University of Gdansk, Department of Hematology and Transplantology, Gdansk, Poland

M

Marek Hus

A

Alessandra Romano

J

John Fahrenholz

30Vanderbilt University Medical Center, Nashville, United States

F

Frederick Lansigan

19Dartmouth-Hitchcock Medical Center, Lebanon, United States

C

Cristina Papayannidis

2IRCCS Azienda Ospedaliero-Universitaria di Bologna, Istituto di Ematologia “Seràgnoli”, Bologna, Italy

H

Helena Pomares

1Institut Català d'Oncologia - Hospital Duran i Reynals, Hematology, Hospitalet de Llobregat, Spain

M

Michela Rondoni

6Hematology Unit, Ravenna Hospital, University of Bologna, Ravenna, Italy

C

Celalettin Ustun

9Rush University, Chicago, United States

R

Richard Herrscher

36AirCare, Planto, United States

M

Michael Manning

37One of a Kind Medical Research, Paradise Valley, United States

S

Stéphane Barete

22Unit of Dermatology Reference Centre for Mastocytosis (CEREMAST) AP-HP, Pitié-Salpêtrière Hospital, Paris, France

M

Mar Guilarte

39Hospital Universitario Vall d'Hebron, Barcelona, Spain

C

Candido Rivera

1Mayo Clinic, Department of Internal Medicine, Rochester, United States

J

Jonathan Bernstein

41University of Cincinnati, Cincinnati, United States

P

Peter Vadas

29Department of Medicine, Division of Clinical Immunology and Allergy, St Michael's Hospital, University of Toronto, Toronto, Canada

C

Chiara Elena

4University of Pavia, Hematology, Pavia, Italy

D

Derek McCulloch

44Royal Prince Alfred Hospital, Camperdown, Australia

N

Nina Orfali

45St. James's Hospital, Dublin, Ireland

C

Clodagh Keohane

46Cork University Hospital, Cork, Ireland

F

Francesco Mannelli

1SOD Ematologia, Università di Firenze, AOU Careggi, Firenze, Italy

P

Philippe Schafhausen

3University Medical Center Hamburg-Eppendorf, Department of Oncology and Hematology, Hamburg, Germany

A

Amanda Pilla

49Cogent Biosciences Inc., Waltham, United States

J

Jenna Zhang

49Cogent Biosciences Inc., Waltham, United States

L

Lei Sun

N

Nisha Shah

49Cogent Biosciences Inc., Waltham, United States

H

Hina Jolin

49Cogent Biosciences Inc., Waltham, United States

R

Rachael Easton

1Cogent Biosciences Inc., Waltham, United States

J

Jessica Sachs

49Cogent Biosciences Inc., Waltham, United States

F

Frank Siebenhaar

9Institute of Allergology, Charité – Universitätsmedizin Berlin, Corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany

D

Daniel Deangelo

2Dana Farber Cancer Institute, Boston, United States