A quantitative definition of the clinical manifestations of GATA2 deficiency in adults

S Shruthi Mohan (University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, United States) T Tilda E Carlelycke (Northwestern University, Chicago, Illinois, United States) A Ashwin Lakshman Koppayi (Northwestern University, Chicago, Illinois, United States) T Taylor Walker (Northwestern University, Chicago, Illinois, United States) E Eran Tallis (University of Rochester Medical Center, Rochester, New York, United States) A Amy M. Trottier (Dalhousie University, Halifax, Canada) K Katherine R. Calvo (National Institutes of Health Clinical Center, Bethesda, Maryland, United States) B Beatriz E. Marciano (National Institutes of Health, Bethesda, Maryland, United States) A Amy P. Hsu (National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, Maryland, United States) S Steven M. Holland D Dennis D. Hickstein (National Institutes of Health, Bethesda, Maryland, United States) M Marcin W Wlodarski (St. Jude Children Research Hospital, Memphis, Tennessee, United States) E Emilia Kozyra (University of Freiburg, Freiburg, Germany) M Matthew Collin (Newcastle University, Newcastle Upon Tyne, United Kingdom) C Christopher N. Hahn (SA Pathology, Adelaide, Australia) A Anna L Brown (SA Pathology, Adelaide, Australia) P Piers Blombery (Peter MacCallum Cancer Centre, Melbourne, VIC, Australia) I Ing Soo Tiong (Peter MacCallum Cancer Centre, Melbourne, VIC, Australia) Y Yamuna Kankanige (Peter MacCallum Cancer Centre, Melbourne, Australia) L Lucy C Fox (Peter MacCallum Cancer Centre, Melbourne, Australia) S Sioban B. Keel (University of Washington, Seattle, Washington, United States) M Marshall S. Horwitz (University of Washington, Seattle, Washington, United States) T Tom J Vulliamy (Queen Mary University of London, London, United Kingdom) I Inderjeet Dokal (Queen Mary University of London, London, United Kingdom) D Daniela P Mendes-de-Almeida (Fundação Oswaldo Cruz, Rio de Janeiro, Brazil) R Rodrigo Tocantins Calado M Marcela Cavalcante de Andrade Silva (Faculdade de Medicina da Universidade Federal de Alagoas, Maceió, Brazil) E Elvira Deolinda Rodrigues Pereira Velloso (Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo, Sao Paulo, Brazil) C Courtney D DiNardo (The University of Texas MD Anderson Cancer Center, Houston, Texas, United States) S Shai Izraeli (Felsenstein Research Institute, Schneider Children's Medical Center of Israel, Tel Aviv University, Petach Tiqva, Israel) J Joanne Yacobovich (Schneider Children's Medical Center of Israel, Petach Tikva, Israel) M Michaela Sherbeck (Nebraska Cancer Specialists, Omaha, Nebraska, United States) J Julia T Warren (Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States) M Minjie Luo W William J Smith (Wayne State University School of Medicine, Detroit, Michigan, United States) Z Zachary Hattig (Northwestern University, Chicago, Illinois, United States) R Ryan J Stubbins (Leukemia/BMT Program of British Columbia, BC Cancer and Vancouver Coastal Health, Vancouver, British Columbia, Canada) S Simone K Feurstein (Heidelberg University Hospital, Heidelberg, Germany) P Panagiotis Baliakas (Science for Life Laboratory, Uppsala University, Uppsala, Sweden) X Xi Luo A Amagoia Ruiz Martin (Hospital Universitario de Gran Canaria Doctor Negrín, Las Palmas De Gran Canaria, Spain) A Adam Gordon E Emery H Bresnick (University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin, United States) G Guimin Gao (The University of Chicago, Chicago, Illinois, United States) M Masha Kocherginsky (Northwestern University Feinberg School of Medicine and the Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, Illinois, United States) D David Wu L Lucy A. Godley

Abstract

Germline GATA2 deficiency is a pleiotropic condition 1-8 characterized by numerous phenotypes, including monocytopenia, immunodeficiency, microbial susceptibilities, and high rates of myeloid malignancies 1,8. Accurate curation of germline GATA2 variants is critical for patient care and requires well-defined phenotypes associated with GATA2 deficiency. The many phenotypes attributed to the condition render a simple description of GATA2 deficiency difficult, complicating the development of GATA2 variant curation rules. Therefore, the Myeloid Malignancy Variant Curation Expert Panel (MM-VCEP) sought to define GATA2 deficiency based on a statistical comparison of phenotype data. To do so, the MM-VCEP systematically analyzed phenotype data and applied statistical comparisons to define the phenotypic features of GATA2 deficiency to inform germline variant curation. The MM-VCEP assembled an international cohort of 339 people with clinically diagnosed GATA2 deficiency from 16 centers in seven countries. The 73 phenotypes of these individuals were compared statistically to those of control participants from the UK Biobank (UKBB). We compared single phenotypes as well as combinations of two, three, and four phenotypes in people with clinically diagnosed GATA2 deficiency to UKBB controls. We defined GATA2 deficiency as any of the 2,903 combinations of two or three phenotypes with log10Odds Ratio ≥3 (OR ≥ 1000). This definition of GATA2 deficiency will inform gene-specific phenotypic criteria used in GATA2 variant curation guidelines that will facilitate standardized variant curation by clinical laboratories worldwide.

Article Details

Journal Blood
Volume / Issue Vol. 1, Issue 1
Published August 06, 2026
ISSN 0006-4971
Publisher Elsevier BV

Journal Info

Blood

Elsevier BV

ISSN: 0006-4971 Health Sciences

Authors (47)

S

Shruthi Mohan

University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, United States

T

Tilda E Carlelycke

Northwestern University, Chicago, Illinois, United States

A

Ashwin Lakshman Koppayi

Northwestern University, Chicago, Illinois, United States

T

Taylor Walker

Northwestern University, Chicago, Illinois, United States

E

Eran Tallis

University of Rochester Medical Center, Rochester, New York, United States

A

Amy M. Trottier

Dalhousie University, Halifax, Canada

K

Katherine R. Calvo

National Institutes of Health Clinical Center, Bethesda, Maryland, United States

B

Beatriz E. Marciano

National Institutes of Health, Bethesda, Maryland, United States

A

Amy P. Hsu

National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, Maryland, United States

S

Steven M. Holland

D

Dennis D. Hickstein

National Institutes of Health, Bethesda, Maryland, United States

M

Marcin W Wlodarski

St. Jude Children Research Hospital, Memphis, Tennessee, United States

E

Emilia Kozyra

University of Freiburg, Freiburg, Germany

M

Matthew Collin

Newcastle University, Newcastle Upon Tyne, United Kingdom

C

Christopher N. Hahn

SA Pathology, Adelaide, Australia

A

Anna L Brown

SA Pathology, Adelaide, Australia

P

Piers Blombery

Peter MacCallum Cancer Centre, Melbourne, VIC, Australia

I

Ing Soo Tiong

Peter MacCallum Cancer Centre, Melbourne, VIC, Australia

Y

Yamuna Kankanige

Peter MacCallum Cancer Centre, Melbourne, Australia

L

Lucy C Fox

Peter MacCallum Cancer Centre, Melbourne, Australia

S

Sioban B. Keel

University of Washington, Seattle, Washington, United States

M

Marshall S. Horwitz

University of Washington, Seattle, Washington, United States

T

Tom J Vulliamy

Queen Mary University of London, London, United Kingdom

I

Inderjeet Dokal

Queen Mary University of London, London, United Kingdom

D

Daniela P Mendes-de-Almeida

Fundação Oswaldo Cruz, Rio de Janeiro, Brazil

R

Rodrigo Tocantins Calado

M

Marcela Cavalcante de Andrade Silva

Faculdade de Medicina da Universidade Federal de Alagoas, Maceió, Brazil

E

Elvira Deolinda Rodrigues Pereira Velloso

Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo, Sao Paulo, Brazil

C

Courtney D DiNardo

The University of Texas MD Anderson Cancer Center, Houston, Texas, United States

S

Shai Izraeli

Felsenstein Research Institute, Schneider Children's Medical Center of Israel, Tel Aviv University, Petach Tiqva, Israel

J

Joanne Yacobovich

Schneider Children's Medical Center of Israel, Petach Tikva, Israel

M

Michaela Sherbeck

Nebraska Cancer Specialists, Omaha, Nebraska, United States

J

Julia T Warren

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States

M

Minjie Luo

W

William J Smith

Wayne State University School of Medicine, Detroit, Michigan, United States

Z

Zachary Hattig

Northwestern University, Chicago, Illinois, United States

R

Ryan J Stubbins

Leukemia/BMT Program of British Columbia, BC Cancer and Vancouver Coastal Health, Vancouver, British Columbia, Canada

S

Simone K Feurstein

Heidelberg University Hospital, Heidelberg, Germany

P

Panagiotis Baliakas

Science for Life Laboratory, Uppsala University, Uppsala, Sweden

X

Xi Luo

A

Amagoia Ruiz Martin

Hospital Universitario de Gran Canaria Doctor Negrín, Las Palmas De Gran Canaria, Spain

A

Adam Gordon

E

Emery H Bresnick

University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin, United States

G

Guimin Gao

The University of Chicago, Chicago, Illinois, United States

M

Masha Kocherginsky

Northwestern University Feinberg School of Medicine and the Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, Illinois, United States

D

David Wu

L

Lucy A. Godley